There is a very useful article from Discover Society which considers what happens in families – and in terms of acting like ‘family’ – when someone is at End Of Life.
The article also contains some useful additional reading at the bottom of the page.
Would you like to explore the world of End Of Life and building compassionate communities and networks, including family?
It is often difficult when we are ill, stressed, overwhelmed, or any combination of these, to remember that is is perfectly fine to say ‘no’ when we need to. During End Of Life – our own, or that of someone close to us – it is particularly sensible to hold strong boundaries, and to refuse information or inappropriate actions from those around us. Even when they mean well.
A useful set of parameters is provided here – and although the article is written by an oncologist and is focused on those living with a cancer diagnosis, the parameters laid out translate well to other illnesses and diagnoses.
An End Of Life Doula can be a great asset in helping you to navigate your treatment choices and options, construct the compassionate community that will serve you best in your own personal circumstances, and to help you hold the boundaries in place when that help is needed or requested by you.