A look into family life at End Of Life

There is a very useful article from Discover Society which considers what happens in families – and in terms of acting like ‘family’ – when someone is at End Of Life.

The article also contains some useful additional reading at the bottom of the page.

Would you like to explore the world of End Of Life and building compassionate communities and networks, including family?

Let’s talk.

Senior Dogs – some support group information

I have had several conversations lately, both over the phone and in person on the dog beach when I have been walking Cully, about dementia* in dogs. Cully has knee replacements, so I myself am often focused upon physical deterioration for senior dogs, and when a good friend sent through some information about support groups for cognitive deterioration I thought it would be a sensible time to share this information.

This section is a taster, obviously there are many different blogs, pages, and books/articles out there, but they are a good place to start if you are unsure of what kind of information, writing style, and support group environment you are looking for. Some of the blog links are for more general senior dog ownership, but include canine dementia and/or Alzheimer’s information. Don’t forget that I am an End Of Life Doula for companion animals as well as humans – if you would like support for exploring your pet’s End Of Life choices and options I am happy to help you.

Let’s talk.

Facebook: Dogs with Canine Dementia or Canine Cognitive Dysfunction, Dog Dementia, Senior Dog Care Club –  N.B.: at least two of these are closed groups, so you will need to be approved to access the content.

Blogs: Senior Tail WaggersSenior Dog Blog,  Dog Dementia

Book: Remember me? Loving and caring for a dog with canine cognitive dysfunction (please remember that Amazon do not pay taxes in Australia, so you may be able to order this book from your local independent bookshop)

*Remember that dogs and humans have co-evolved for a very long time, and many of the common symptoms of dementia in humans – Sundowner’s syndrome, aggressiveness, vagueness, decreased activity, etc. – may also present in our dogs.

 

Vale – a Reflection on Authors and Other Loved Ones

Vale means a written or verbal farewell, that is why the term shows up on social media platforms when someone has just died.

I have had a very busy start to February, and like many of us with over-committed lives (I am still a casual-contract social science academic and taught a Summer semester intensive; the marking turnarounds are brutal!) I began to write a post and needed to turn my attention elsewhere when I had begun a post in tribute to the late author Ursula K Le Guin.

Ursula K. Le Guin_1974_The Dispossessed.jpg

It was a surprise (and chagrin-making…) to come back the blog here after far too long – more than two weeks have passed – and see that I had left my intended memorial post too late. For which I apologise unreservedly to Ms. Le Guin, who deserves all fulsome and timely tributes. The Dispossessed changed my life when I was in my mid-teens, and her work has informed a great deal of my thinking and life ever since. The Earthsea Trilogy are also wonderful and influential books, and either of these are good starting places if you are new to Le Guin’s work*. And the tardiness of my written response – my literal “Vale” – serves as a good reminder to me that my life need not be so stupendously busy, ever, that I do not take a moment or two to let people know I love and care about them, or that when an author dies I cannot make time to make full notes/write about what made they way they touched my life so vital.

Books, the written works and words, the mindset and perspective that a book/author brings to my life is essential to the way I position myself in the world – take a look at the ever-increasing number of death-, dying- and End Of Life-related book reviews here on the site. However, I also read for pleasure, and also for research – books and authors form part of my personal intellectual oxygen mix, I need them to keep living as the individual I am.

I am reminded this month, with a gap in my blog posts and a hectic schedule, to pay attention to the people who touch my life. I am going to exert time and effort for the rest of February to tell the people who matter to me that they are important. I will tell the people I love that I love them, the people I respect that I respect them. I invite you, Gentle Reader, to do the same.

Our time is finite, and we do not know if we have until next week, next month, “next time” or any sort of “later” – because time waits for none of us, no matter how busy we tell ourselves we are with all our things to do. And do not forget to walk into your bathroom, look yourself in the eye and tell yourself that you love you, too. Make time for the people you love this month, and also for the things you love… because, why not?

And hey, if you need to make time to do some advance planning for your End Of Life as a gesture to the people in your life that you love and value, I am happy to help you explore your options. Communicate your love to your important people, then get in touch with me for an appointment.

Let’s talk.

*But please, please do buy them from your local independent bookseller – Amazon does not pay taxes in Australia. Keep local businesses going.

Informal carers, the cared-for, and how an End Of Life Doula can benefit both.

ScottWilliamsTEDSpeaker


This TED talk  by Scott Williams (pictured above), considers the importance of unpaid carers, how much carers boost the economy (there are Australian figures in this talk), and how essential the role and work of a carer is not just to society, but for the person who is cared for. The role of carer is one that is quite familiar to many, many members of our communities – but we may be frequently isolated within that role, or not well-versed in articulating that we are carers (particularly when the role has slowly changed and  increased over time. If you are caring for someone at their End Of Life, or if you yourself are at End Of Life and would like to better understand compassionate communities and how to more effectively communicate your needs around caring, an End Of Life Doula may be just what you need.
In our multi-tasking 21st century lives, having someone to focus on the way a compassionate community of carers and supporting, loving people interact together can be the perfect stress-reduction factor. End Of Life Doulas provide a sympathetic ear, an objective and compassionate set of problem-solving skills, and in my case a background as a psychotherapist and counsellor which is useful when carers/ network members may be tired, emotional, distressed or overwhelmed.
 
End Of Life Doulas like myself often act as negotiators and communication hubs for those around someone at End Of Life, passing along information, doing research, translating medical-speak when needed, helping to arrange schedules and/or helping friends and family to better understand how to plan time and activities more effectively to fit in with busy lifestyles. 
 
I am an End Of Life Doula who can facilitate communications amongst and between carers and the cared-for, help you build a more supportive network of support, help you better understand your advance planning choices, and be a proactive member of your End Of Life community.
 
Let’s talk.

Sensible advice for holding your boundaries

It is often difficult when we are ill, stressed, overwhelmed, or any combination of these, to remember that is is perfectly fine to say ‘no’ when we need to. During End Of Life – our own, or that of someone close to us – it is particularly sensible to hold strong boundaries, and to refuse information or inappropriate actions from those around us. Even when they mean well.

A useful set of parameters is provided here – and although the article is written by an oncologist and is focused on those living with a cancer diagnosis, the parameters laid out translate well to other illnesses and diagnoses.

An End Of Life Doula can be a great asset in helping you to navigate your treatment choices and options, construct the compassionate community that will serve you best in your own personal circumstances, and to help you hold the boundaries in place when that help is needed or requested by you.

Let’s talk.